TLLC's Charity Car Show
Waterford Town Park
8422 Jensen Parkway, Waterford, WI 53185
REV UP Night with Dan Leipen
Saturday August 26th - 6pm-9pm
Car Show ALL DAY!
Sunday August 27th - 8am-4pm
Our 2023 Families
2o23 marks the FIRST year the Tichigan Lake Lions have taken on TWO families. The previous 17 Car Shows had one beneficiary and we believe as a club we can make an impact on these two families. Here are their stories.
Kinsey has Chronic Granulomatous Disease or (CGD) is very rare and life threatening. About 20 people born with CGD each year. The basics are that CGD does not allow the immune system to work properly. Common bacterial & fungal infections can be life threatening. Such infections are common and impact multiple body systems such as the skin, liver, stomach, intestines, brain and eyes.
Treatment for CGD is rigorous and options are limited, given the disease path. Kinsey's medical team & family decided her best course will be to have a bone marrow transplant. This treatment is the same type of treatment when you have a blood cancer. The goal of a bone marrow transplant is to kill the abnormal cells that exist and "reboot" the system with new cells received from a donor who is a match, Kinsey's sister happens to be a match. In order to do this Kinsey must undergo treatment with drugs that have many side effects and not without risk. There is not a large amount of data simply due to how rare the disease is which means there are many unknowns. Please help support this family through both prayer and contributing in some way to the Car Show.
Garnet was born June 25th, 2022, 6 weeks early during a traumatic delivery that resulted in a C-section and him being taken directly to the NICU. From the start and weighing in at only 4lbs 5oz he was in for the fight of his life. His mother also had a trying time for the 72 hours following his birth. Taylor had to go through multiple surgeries, separation from her boyfriend and of course separation from her brand new baby boy. For the next weeks and months through the first year, this young family has been through a lot!
As the months go by, we continue to get more information about Garnet, but unfortunately the list of conditions has grown. Mixed Tone Quadriplegic Cerebral Palsy, Lennox-Gastaut Syndrome, Hypoxic Ischemic Encephalopathy, Dystonia, and Cortical Visual Impairment have been added recently. Garnet only has brain function in 48% and doctors don’t know yet what his intelligence level will be. Continue to pray for Garnet’s development, his family and their spirits.
